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Protocols: An enemy for rare cancers (especially after this week)
How am I going to break these barriers, these protocols. Suddenly time is running out. In my latest blog I told the suddenly bad...
patriciaberkhof83
Apr 25, 20213 min read
Bad bad news
Got the results back with the worst news. One of the tumors became resistent to the chemo and not only resistent but also more aggressive...
patriciaberkhof83
Apr 11, 20212 min read
patriciaberkhof83
Apr 7, 20210 min read
The Dutch vs. rare cancers
Last year, Dutch news papers stated that the overall survival rate of people with cancer increased the last couple years and that The...
patriciaberkhof83
Mar 15, 20213 min read
I've got a story to tell
Today starts the Week of Rare Cancers, to raise awareness and promote the stories of people with rare cancers, such as mine. I have...
patriciaberkhof83
Mar 8, 20211 min read
patriciaberkhof83
Mar 8, 20210 min read
Ladies, it's boob touch time
A friendly reminder to check up your breast on a regular base. Breast cancer can happen to everyone. This video by Linda Hakeboom, an...
patriciaberkhof83
Mar 5, 20211 min read
How a morning can go from bad to beautiful: My midway chemo results.
Emo breakdown It's Tuesday morning and tomorrow chemo number 4. But this morning i'm getting the news of my CT scan. Just before chemo...
patriciaberkhof83
Feb 10, 20212 min read
Chemo rut brain dump
My 4th chemo. Chemo taste in mouth, in my gut, everywhere. I smell like chemo, disgusted, feeling it's getting heavier every chemo round....
patriciaberkhof83
Jan 25, 20211 min read
Got a hommage from my hair
So this week happened what you're 'waiting' for when you get chemo, the hair loss. The unavoidable The hair loss, I think it's one of the...
patriciaberkhof83
Dec 8, 20202 min read
Doctors are humans, right?
Doctors are humans and humans make mistakes, right? But how much /in what extend can you accept it that mistakes are made when it...
patriciaberkhof83
Dec 8, 20202 min read
"Experience is as to intensity, and not as to duration"
In 'normal' life everyone recognizes moments of the daily rut and the search for an escape, whatever helps you to get out if your...
patriciaberkhof83
Nov 6, 20201 min read
patriciaberkhof83
Oct 12, 20200 min read
Search for the best treatment plan
Knowing that the doctors in our country don't have experience with treatment of your disease makes you insecure. Finding out that the...
patriciaberkhof83
Oct 9, 20201 min read
MyTomorrows can help you
When I asked about the possibility of participating trials, one of the doctors at AVL suggested me to contact MyTomorrows. This...
patriciaberkhof83
Oct 6, 20202 min read
Cancer and COVID-19
When COVID-19 started in the beginning of this year I was so glad I was done with treatments of my cancer. My plastic surgery was delayed...
patriciaberkhof83
Sep 17, 20201 min read
Is it okay to send her a message?
5 weeks further and still not able to react, connect to a lot of people in my surroundings. Unconsciously I created a bubble and in this...
patriciaberkhof83
Sep 17, 20201 min read
patriciaberkhof83
Sep 7, 20200 min read
patriciaberkhof83
Sep 3, 20200 min read
Trying to relax after the news
We were planning to go on holiday a couple of days after the scan, before the news messed things up. For the third time this year.... We...
patriciaberkhof83
Aug 25, 20201 min read
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